Programpunkter

Implementation Status of the Proposal for a Regulation of the European Health Data Space in Portugal.

CANCELLED. 
Research on real-world data is becoming increasingly important. The current restriction to clinical data in Germany limits the view of the patient. To gain comprehensive insights, claims data can be added to the existing knowledge. However, standardized transfer of German claims data into OMOP CDM is currently not possible. In this paper, we conducted an evaluation regarding the coverage of source vocabularies and data elements of German claims data in OMOP CDM. We point out the need to extend vocabularies and mappings to support research on German claims data.

Short introduction to the National Research Data Infrastructure for Personal Health Data (NFDI4Health) and proposed solutions towards findability and interoperability of clinical and epidemiological studies. Two services will be presented: the German Central Health Study Hub to support the findability of studies and the Metadata Annotation Workbench to support enrichment of data collection instruments with standardized vocabularies on the study item level.

Patient generated health data (PGHD) integrates patients` values and preferences into decision-making. Digitalization enables the integration of PGHD with electronic patient records. However, the lack of digital tools and applications hampers the use of PGHD. The purpose of this workshop is to gather the current situation in research and to form a transdisciplinary network of researchers.Discussion topics:1.Identification of the researchers, research projects and digital tools and applications for PGHD to build a network of researchers in the field.2.Experiences and perceptions of the research and practice regarding the digital tools and applications for PGHD3.Recommendations for future research topics in the field of PGHD.Keywords. digitalization, shared decision making, patient generated health dataYou are warmly welcome!