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Insights from a Finnish Survey on Citizens’ Attitudes Toward the Secondary Use of Health Data
Antti Piirainen
Tisdag 5 maj 2026 15:30 - 15:50 XI - lokal ej bestämd
Nordisk utblick, English, Live + på plats, Presentation, Orientering, Introduktion, Chef/Beslutsfattare, Verksamhetsutveckling, Patientorganisationer/Brukarorganisationer, Styrning/Förvaltning, Uppföljning/Nulägesbeskrivning, Information/myndighet
This presentation explores findings from a citizen survey conducted in Finland on awareness and attitudes toward the secondary use of health data. Results reveal strong support for research purposes, cautious views on commercial use, and a strong desire among citizens to retain control over their own health data. It will walk through key insights and discuss how these findings could guide practical implementation towards the upcoming EHDS regulation, inviting participants to reflect on their implications.
From words to action – implementing person-centered transitional care for adolescents with long-term conditions: the STEPSTONES research consortium
Carina Sparud Lundin
Tisdag 5 maj 2026 15:30 - 15:45 G2
Implementation and Knowledge Translation, English, Oral
Oral
Enhancing Person-centred Neuro-Oncological Cancer Care - Beyond Borders and across disciplines
Karin Piil
Tisdag 5 maj 2026 15:30 - 15:45 G4
Learning and Education, English, Oral
Oral
Poster session with scheduled walks (start time to be announced)
Tisdag 5 maj 2026 15:45 - 16:30 Poster Arena
Poster session, English
Secondary‑use health data: Experiences from a Findata‑governed lung cancer study
Ilona Ruotsalainen
Tisdag 5 maj 2026 15:50 - 16:10 XI - lokal ej bestämd
Nordisk utblick, English, Live + på plats, Presentation, Orientering, Fördjupning, Tekniker/IT/Utvecklare, Forskare (även studerande), Vårdpersonal, Exempel från verkligheten (goda/dåliga), Innovation/forskning, Informatik/Interoperabilitet
Europe is preparing for the European Health Data Space (EHDS), but what does it truly take to run a large secondary‑use health data project under a national access body that spans multiple data controllers and modalities? This presentation offers research-side insights from Finland in running a large Findata‑governed project combining EHR and CT imaging data for lung cancer risk assessment and diagnosis. The talk reflects on what we encountered across the life cycle of real-world health data: data discovery, contractual arrangements, data quality assessment, challenges of large data sets, data models and data usage in secure processing environment. The goal is to offer an experience-based view of how complex secondary-use health data projects operate, and how these observations can influence future health data and AI research, especially aligned with the EHDS principles.
Award Ceremony Healthtech Award 2026
Tisdag 5 maj 2026 16:00 - 16:30 Innovation Area
Innovation area, English, Live + på plats, Annat, Inspiration
Who winns the Healthtech Award 2026? Welcome to the award ceremony where the winner will be presented! More information to follow
Lessons learned from a multi‑country federated analysis using OMOP in the Nordics (the VALO pilot)
Carl Jarnling, Susanna Flaherty
Tisdag 5 maj 2026 16:10 - 17:00 XI - lokal ej bestämd
Nordisk utblick, English, Live + på plats, Utökad, Verktyg för implementering, Fördjupning, Chef/Beslutsfattare, Politiker, Verksamhetsutveckling, Tekniker/IT/Utvecklare, Forskare (även studerande), Studerande, Patientorganisationer/Brukarorganisationer, Exempel från verkligheten (goda/dåliga), Nytta/effekt, Styrning/Förvaltning, Innovation/forskning, Test/validering, Juridik, Information/myndighet, Informatik/Interoperabilitet
The VALO pilot is a multi‑country federated research study in non‑small cell lung cancer (NSCLC) across the Nordics using the OMOP Common Data Model. This session will share key outcomes from the study as well as lessons learned and recommendations from coordinating and conducting a study between University Hospitals in Norway, Finland, and Denmark. We discuss learnings from technical, informatics, governance, and organizational perspectives, and present recommendations for future collaborative health‑data research in the Nordics.The session will end with a discussion with the Swedish actors involved as observers and their reflections and key takeaways for moving Sweden forward in OMOP conversions of data and federated analytics.
Networking mingle – Healthtech Award and friends
Tisdag 5 maj 2026 16:30 - 17:30 Innovation Area
Innovation area, English, Enbart på plats, Övrigt
From interviews to insights in long-term care: AI models for thematic, sentiment and summarization of interviews to support quality of care
Sil Aarts
Tisdag 5 maj 2026 16:30 - 16:45 G1
Digitalisation and eHealth, English, Oral
Oral
Policy-practice gap in person-centered care for maternal mental health in India
Sambit Dash
Tisdag 5 maj 2026 16:30 - 16:45 G2
Health Equity, English, Oral
Oral
Making an iMPAKT: utilising person-centred nursing & midwifery KPIs and digital technology to transform healthcare environments
Val Wilson, Tanya McCance, Karen Tuqiri, Mary Mulcahy, Deborah Muldrew
Tisdag 5 maj 2026 16:30 - 17:30 G3
Organisational Governance, English, Symposia/Panel
Symposia/Panel
The process of change in introducing coproduction - the case of ESTHER Network in Singapore
Esther, Li Ping Lim
Tisdag 5 maj 2026 16:30 - 16:45 G4
Co-creation, English, Oral
Oral
Two decades of delivering Care and Support Planning for people with long term conditions. Learning for person centred care and application in Sweden
Stina Mannheimer, Nick Lewis-Barned, Lindsay Oliver
Tisdag 5 maj 2026 16:30 - 17:30 J1
Workshops, English, Workshop
Workshop
Digital twins to support person-centred care
Sandra Saade
Tisdag 5 maj 2026 16:45 - 17:00 G1
Digitalisation and eHealth, English, Oral
Oral
Person-Centered Care during Antenatal, Intrapartum, and Postnatal Care: analysis of data from Ghana and Kenya
Patience Afulani
Tisdag 5 maj 2026 16:45 - 17:00 G2
Health Equity, English, Oral
Oral
Cultural activities and patient empowerment created through co-operation
Maria Linderström
Tisdag 5 maj 2026 16:45 - 17:00 G4
Co-creation, English, Oral
Oral
Wearable sensors for fall risk screening – Insights from older persons
Madelene Törnblom
Tisdag 5 maj 2026 17:00 - 17:15 G1
Digitalisation and eHealth, English, Oral
Oral
Disparities in autonomy in decision-making during pregnancy in Canada: Findings from a national survey of patient-reported experiences.
Kathrin Stoll (Presenter)
Tisdag 5 maj 2026 17:00 - 17:15 G2
Health Equity, English, Oral
Oral
Working Together: Lessons Learned from an Inflammatory Bowel Disease (IBD) Patient Research Council
Sandra Zelinsky
Tisdag 5 maj 2026 17:00 - 17:15 G4
Co-creation, English, Oral
Oral
The Influence of Artificial Intelligence on Person-Centred Care: Insights from AI-Assisted Triage in Primary Care
Elin Siira
Tisdag 5 maj 2026 17:15 - 17:30 G1
Digitalisation and eHealth, English, Oral
Oral