
Panel: Patient and public involvement structures and practices impacting person-centred healthcare and research (global perspectives) [PCC011]
Onsdag 6 maj 2026 16:00 - 17:00 G3
Workshop leader: Maria J SantanaPaneldeltagare: Brendan McCormack, Jana Bergholtz, Vincent Dumez
Spår: Panel Patient & Public Involvement
Patient and public involvement (PPI) is increasingly implemented in healthcare organisations and research, and regarded essential in person-centred care. However, supportive structures are lacking in most countries and implementation varies world-wide. This panel discussion proposes to learn from good examples and articulate needs for further development.
In this panel, we will discuss the following questions:
- What are purposeful structures for patient and public involvement in healthcare and research? What is the impact thereof?
- How to create and make use of synergies and links between patient and public involvement in healthcare and research?
- Impact of PPI processes, culture change and impact/outcome for patients?
- How to enable the inclusion of marginalised groups and people whose voices tend to be hidden?
- Are there features of patient and public involvement that support person-centred care? If so, what features?
- How can patient and public involvement become transformative in health care?
The panel will be moderated by Maria Santana, Professor in public health at the University of Calgary and provincial director in Patient Engagement for the Alberta Strategy for Patient-oriented Research, Canada.
Invited panelists:
Jana Bergholtz, patient partner at the University of Gothenburg, Centre for Person-centred Care (GPCC). She studies PPI in healthcare and research and works to reduce tokenism in involvement practices.
Vincent Dumez, founding member of the Centre of Excellence on Partnership with Patients and the Public (CEPPP), has played a leading role in advancing patient partnership in healthcare, education, and research in Canada and internationally.
Brendan McCormack, Head of School and Dean, The Susan Wakil School of Nursing and Midwifery and Head of the CARE Program, Sydney Policy Lab, The University of Sydney, Australia. Brendan has a long history of leading collaborative research and development that is participatory and inclusive.
Konferens
GCPCC
GCPCC Seminarietyp
Panel
GCPCC Kod
PCC014
Föreläsare
Maria J Santana Workshop leader
Brendan McCormack Paneldeltagare
Professor/Head of School and Dean
The University of Sydney
I am Head of School and Dean at The Susan Wakil School of Nursing and Midwifery (inc Sydney Nursing School), the Faculty of Medicine and Health at The University of Sydney. I am also Academic Chair of ‘The CARE Program at Sydney Policy Lab, University of Sydney; and Chair of the Council of Deans of Nursing and Midwifery for Australia and New Zealand. My research focuses on person-centred healthcare with a particular focus on the development of person-centred cultures, practices and processes. I am a Commissioner on the Lancet Global Commission on People-centred Healthcare for Universal Health Coverage hosted by Harvard University.
Jana Bergholtz Paneldeltagare
Patient Partner / Researcher
GPCC, University of Gothenburg
I'm a patient partner (living with cavernoma) with research background (PhD in Earth & Planetary Sciences). At GPCC/University of Gothenburg, my research focus is on patient and public involvement (PPI), with interest in: 1) How to reduce tokenism in PPI?, 2) Representativeness, 3) Pre-conditions and support infrastructures for PPI. You can find me on LinkedIn here: https://www.linkedin.com/in/jana-bergholtz-74298310b/
Vincent Dumez Paneldeltagare
Décigone