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Profilbild för Bridging the Gap Between Cancer Care and Civil Society: A Realist Evaluation of a Patient-Led Social Innovation in Sweden [PCC022]

Bridging the Gap Between Cancer Care and Civil Society: A Realist Evaluation of a Patient-Led Social Innovation in Sweden [PCC022] Har passerat

Tisdag 5 maj 2026 17:15 - 17:30 G4

Moderator: Kerry Kuluski
Rapportör: Frida Smith

Spår: Orals Co-creation

Cancer rehabilitation in Sweden is fragmented and unequal, leaving many patients and their families without adequate support after clinical treatment ends. This ongoing study evaluates Kraftens hus (KH), a patient-led social innovation designed to complement traditional cancer care by offering emotional, social, and practical support through civil society engagement. Using a modified realist evaluation framework, we investigate how KH functions across micro, meso, and macro levels, and under what contextual conditions its mechanisms lead to beneficial outcomes. Data collection includes qualitative interviews, surveys, document analysis, and focus groups across four KH sites (Borås, Göteborg, Stockholm/Gotland, Östersund). At the micro level, we explore how KH supports individuals in navigating fragmented care systems and enhances their sense of coherence and self-efficacy. At the meso level, we examine the organizational model of KH and its capacity to foster cross-sectoral collaboration. At the macro level, we assess how patient involvement and co-production contribute to system-level change and sustainability. Our initial program theory suggests that KH improves quality of life for cancer-affected individuals by activating mechanisms of peer support, empowerment, and resource integration. The organizational model is expected to facilitate trust and legitimacy among stakeholders, while patient-driven processes enhance relevance and responsiveness. This empirical study contributes to the growing field of social innovation in healthcare by demonstrating how civil society plays a complementary role in rehabilitation. It will also offer a transferable model for other patient groups and health systems seeking to address complex needs through inclusive and sustainable approaches.
Språk

English

Ämne

Organisatorisk styrning

Föreläsningsformat

Presentation

Föreläsningssyfte

Orientering

Kunskapsnivå

Fördjupning

Målgrupp

Chef/Beslutsfattare
Politiker
Verksamhetsutveckling
Forskare (även studerande)
Studerande
Omsorgspersonal
Vårdpersonal
Patientorganisationer/Brukarorganisationer

Nyckelord

Exempel från verkligheten (goda/dåliga)
Nytta/effekt
Styrning/Förvaltning
Innovation/forskning

Konferens

GCPCC

GCPCC Seminarietyp

Orals

GCPCC Kod

PCC022

Föreläsare

Profilbild för Kerry Kuluski

Kerry Kuluski Moderator

Research Chair and Professor
Institute for Better Health, Trillium Health Partners and Institute of Health Policy, Management and Evaluation, University of Toronto

Dr. Kerry Kuluski is the inaugural Dr. Mathias Gysler Research Chair in Patient and Family Centred Care at the Institute for Better Health, Trillium Health Partners, and a Professor and Affiliated Scientist at the Institute of Health Policy, Management and Evaluation at the University of Toronto in Ontario Canada. An Applied Health Services Researcher and trained Social Worker, she earned her PhD in Health Services and Policy Research from the University of Toronto and completed a Postdoctoral Visiting Fellowship at the University of Oxford. At U of T, she supervises graduate students and serves as Course Director for a graduate-level course she developed on Patient and Caregiver Engagement in Research. She is also an Associate Editor for the international, peer-reviewed journal Health Expectations. Dr. Kuluski leads a program of research focused on the experiences of individuals with chronic health conditions and their caregivers, with the aim of improving care quality and health system performance through meaningful partnerships with patients, caregivers, and providers.

Frida Smith Rapportör

Frida Smith, Johanna Hök Nordberg, Andreas Hellström, Patrik Alexandersson, Eva Dieker, Sara Riggare, Erik Eriksson, Therese Scott Duncan