Enhancing Person-centred Neuro-Oncological Cancer Care - Beyond Borders and across disciplines [PCC064]

Enhancing Person-centred Neuro-Oncological Cancer Care - Beyond Borders and across disciplines [PCC064] Har passerat

Onsdag 6 maj 2026 16:45 - 17:00 G2

Föreläsare: Anneli Ozanne, Florien Boele, Lena Rosenlund
Moderator: Emmelie Barenfeld
Rapportör: Karin Piil

Spår: Orals Learning & Education

This presentation aims to inspire colleagues to advocate for person-centred and family-focused care within their field, recognising that global, interdisciplinary collaboration is key to meaningfully addressing the needs, values, and lived experiences of individuals and families affected by serious illness. Through an ongoing interdisciplinary collaboration led by a dedicated group of nurses and allied healthcare professionals, we have successfully developed a strong international network within neuro-oncology via the European Association of Neuro-Oncology (EANO). At the heart of this collaboration lies a deep commitment to person-centred care, ensuring that the voices, values, and lived experiences of individuals affected by brain tumors and their families are central to all our efforts. This shared ambition has grown steadily over the decades, culminating in the establishment of the International Nurse & Allied Health Professional (AHP) Committee (NAC) in 2021. https://www.eano.eu/about/about-us/committees/nurse-allied-health-professional-committee-nac/. We have achieved the following milestones: Established an international Patient Advocacy Committee, ensuring patient voices shape our work Created a LinkedIn community of over 300 members to foster global dialogue. https://www.linkedin.com/groups/12675762/ Led scientific meetings, highlighting family-focused and person-centred approaches Hold leadership roles, influencing strategic directions Sponsored networking events to build inclusive, collaborative spaces Teach at the EANO School, embedding person-centred principles in education Organise and chair webinars Secured funding to recognise excellence through awards, prizes, and scholarships Contribute to global educational master class Launched a mentorship programme for nurses and AHPs Led international research, resulting in peer-reviewed publications and editorials Facilitated PhD courses, exchanges and collaborative clinical studies Invested in capacity building Nurses and AHPs from the United States and Australia have recently joined the network, and we are actively reaching out to the neuro-oncological society in Asia and Africa. International working groups have been created e.g the International Neuro-oncology Caregiver Consortium and The Response Assessment in Neuro-Oncology (RANO)-Cares.

Språk

English

Konferens

GCPCC

GCPCC Seminarietyp

Orals

GCPCC Kod

PCC064

Föreläsare

Anneli Ozanne Föreläsare

Florien Boele Föreläsare

Lena Rosenlund Föreläsare

RN, PhD, Postdoc.
Gothenburg Centre for Person-Centred Care, Institute of Health and Care Sciences, Gothenburg university and Regional Cancer Centre Stockholm, Sweden

I hold dual affiliations, as a postdoctoral researcher at The Gothenburg Centre for Person-Centred care, Institute of Health and Care sciences at Gothenburg university, and working at the Regional Cancer Centre in Stockholm, Sweden. My key interest in research is person-centred and neuro-oncology care, psychometrics and metrology in the health sciences, patient and caregiver experiences and involvement and the use of patient-reported measures in clinical practice and research. I am also involved in the European Association of Neuro-Oncology (EANO), the European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life group and the Swedish National Quality registry for CNS tumours.

Emmelie Barenfeld Moderator

Associate professor, senior lecturer in occupational therapy
University of Gothenburg

Emmelie Barenfeld is a Senior Lecturer at the Sahlgrenska Academy, University of Gothenburg, and a researcher affiliated with the Centre for Person-Centred Care (GPCC). Her research focuses on person-centred and integrated care from an occupational science perspective, with a particular emphasis on supporting healthcare systems in the transition towards more person-centred and integrated models of care. Her work explores how person-centred practices can be implemented and sustained through leadership, education, and co-created interventions. The research is conducted across diverse care contexts and is characterised by close collaboration and co-creation with people in need of care, health and social care professionals, and leaders.

Selected projects:
Transition towards person-centred care – evaluation of a leadership programme
https://www.gu.se/en/research/transition-towards-person-centred-care-evaluation-of-a-leadership-program
Facilitating Implementation of Person-Centred Care (FLIP)
https://www.gu.se/en/research/facilitating-implementation-of-person-centred-care-the-flip-project
CO-DIAC: Co-designing integrated residential aged care
https://www.gu.se/en/research/co-designing-integrated-residential-aged-care

Karin Piil Rapportör

Associate Professor
University Hospital of Copenhagen, Rigshospitalet

Karin Piil, Lena Rosenlund, Anneli Ozanne, Florien Boele

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