
Involvement, Information and Emotional Support to Cancer Patients with or without an Assigned Care Provider [A036] Har passerat
Onsdag 6 maj 2026 09:00 - 11:15 Poster Arena
Rapportör: Helena Tufvesson StillerSpår: Poster session, Patient & Public Involvement
Patient-reported experience measures (PREMs) represent the patient’s voice and offer a way to evaluate continuity of care. We used PREMs to investigate the impact of having an assigned care provider on experienced involvement, information, and emotional support in patients recently diagnosed with cancer. We analyzed data from a nation-wide survey conducted in patients diagnosed with cancer 6-10 weeks earlier during 2018-2022. The survey covered 28 different types of cancers. An invitation to answer a web questionnaire was sent by regular mail. A reminder and a paper questionnaire were mailed to the patients if no response was recorded after 3 weeks. Answers were grouped and compared using Pearson’s chi-square test. A total of 89% of respondents reported having an assigned care provider. These individuals reported higher levels of involvement, information and emotional support compared to individuals who did not have an assigned care provider. Physicians, contact nurses and other health care staff as assigned care provider were associated with over 80% positive responses in respect of patient involvement and information, whereas patients with no assigned care provider reported only 70 % positive responses in these areas (p<0.001). Only 46% of patients with no assigned care provider were positive to the provided emotional support compared to 69-80% for those with an assigned care provider (p< 0.001). The profession of the care provider had little impact. An assigned care provider is important for maintaining continuity of care. This should be encouraged in cancer care as it leads to better patient experience across all investigated domains. The widely spread use of contact nurses in cancer care in Sweden provides a solid ground for such continuity. The continuous use of PREMs captures these aspects and promotes more people-centered health care practices.
Konferens
GCPCC
GCPCC Kod
PCC151
Föreläsare
Helena Tufvesson Stiller Rapportör
PhD Student
Umeå University
My PhD projects focus on patient reported outcomes and experiences in the cancer field. I am specially interested in measuring perception of information and involvement.