
A patient-reported core outcome set for person-centred care [A100] Har passerat
Onsdag 6 maj 2026 09:00 - 11:15 Poster Arena
Rapportör: Lena RosenlundSpår: Poster session, Evaluation of Interventions
Human diversity underscores the need for care to be person centred to be effective and equitable. Reorienting healthcare towards a more person-centred approach and culture requires a common understanding of what person-centered care means and how it should be measured. This study is part of a larger project to identify an agreed minimum of outcomes, a Core Outcome Set (COS), for the evaluation of health care programs. The purpose of this study is to identify patient-reported core outcomes for evaluating healthcare from a citizen and patient perspective by linking the priorities to the respondents' own experiences of healthcare and health and to evaluate variation in preferences and priorities between people with various experience as patient. A secondary aim is to further psychometrically evaluate patient-reported measures for person-centred care. The study employs a quantitative cross-sectional design, utilizing questionnaires for data collection. Individuals with varying experience as a patient with or without chronic or long-term illness and who have visited healthcare in the past year are invited to participate in the study via the Swedish Citizen Panel at the Society, Opinion and Media (SOM) Institute (N = 2000). The study-specific questionnaire are sent out September 2025, and consists of screening questions for healthcare experience and long-term conditions, a section dedicated to prioritizing outcomes that have been identified in earlier research, and questionnaires on health-related quality of life, and experiences with healthcare. Data will be analyzed descriptively and comparatively between groups. The results will contribute to establishing a COS for future evaluations of healthcare from a citizen and patient perspective. The results from the questionnaires will also be evaluated psychometrically to test the ability of items to measure person-centered care.
Konferens
GCPCC
GCPCC Kod
PCC133
Föreläsare
Lena Rosenlund Rapportör
RN, PhD, Postdoc.
Gothenburg Centre for Person-Centred Care, Institute of Health and Care Sciences, Gothenburg university and Regional Cancer Centre Stockholm, Sweden
I hold dual affiliations, as a postdoctoral researcher at The Gothenburg Centre for Person-Centred care, Institute of Health and Care sciences at Gothenburg university, and working at the Regional Cancer Centre in Stockholm, Sweden. My key interest in research is person-centred and neuro-oncology care, psychometrics and metrology in the health sciences, patient and caregiver experiences and involvement and the use of patient-reported measures in clinical practice and research. I am also involved in the European Association of Neuro-Oncology (EANO), the European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life group and the Swedish National Quality registry for CNS tumours.