Huvudbild för Vitalis 2026

Access, usability and use of a digital tool for symptom management in paediatric cancer [PCC298]

Onsdag 6 maj 2026 12:15 - 13:30 Poster Arena

Rapportör: Angelica Höök

Spår: Poster

Yearly in Sweden, approximately 300 children are diagnosed with cancer. Cancer treatments often cause side-effects such as fatigue, pain, nausea, anxiety, sleep disturbance, and depression, which are symptoms that are subjectively experienced by patients and are most accurately assessed through patient self-report. The use of a digital tool facilitates early detection and management of side-effects also within the home environment. The digital tool, Pictorial Support in Person-Centred Care for Children (PicPecc) enables children to self-report side-effects from home and engage in online, chat-based conversations with healthcare professionals, contributing to the child’s narrative within person-centred care. The study aimed to describe children´s use of PicPecc at home following cancer surgery or chemotherapy, its usability, and how children, parents, and healthcare professionals experience its access. This study uses a convergent mixed method design, analysing both quantitative and qualitative data. Participating children were encouraged to use PicPecc to report their side-effects for two weeks following cancer surgery or chemotherapy. Data was collected through child assessments, chat logs, structured interviews with children, parents and nurses, and System Usability Scale (SUS) responses which ranges from 0 to100. Data were collected from September 2024 to June 2025. Fourteen children aged 6-17 years, five parents and five nurses from two paediatric oncology departments in Sweden were included in the study. Preliminary results indicate that children used PicPecc for 1-27 days, and collective completed 1072 assessments. Online chats were either initiated by nurses as follow-up after assessments or by children asking questions about their well-being and their use of PicPecc. The SUS responses indicated that PicPecc had a mean score above 68, indicating good usability. Findings from participant interviews will be presented at the conference. PicPecc meets the criteria for access, usability, and use, thereby facilitating the self-reporting of side-effects among children at home following inpatient oncology treatment.
Språk

English

Konferens

GCPCC

GCPCC Kod

PCC298

Föreläsare

Angelica Höök Rapportör

Angelica Höök, Emma Forsgren, Maria Björk, Charlotte Castor, Stefan Nilsson